Old about

One of the few things you can count on in life is change. I will occasionally update my “about” section to reflect that. The old ones will be here, for continuity, accountability, etc. June 2016 “About” I used to think I was a cynic. I realize now that I’m better described as a chronically disappointed […]

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Rare or rarely thought of?

It’s rare disease day. I have mixed feelings about participating in rare disease day because my “disease” is not that rare. I have Ehlers Danlos Syndrome (EDS), a disorder of connective tissue called collagen. The type I was diagnosed with when I was in my early 40s has no specific lab test or imaging to […]

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