One of the few things you can count on in life is change. I will occasionally update my “about” section to reflect that. The old ones will be here, for continuity, accountability, etc. June 2016 “About” I used to think I was a cynic. I realize now that I’m better described as a chronically disappointed […]Read More Old about
It’s rare disease day. I have mixed feelings about participating in rare disease day because my “disease” is not that rare. I have Ehlers Danlos Syndrome (EDS), a disorder of connective tissue called collagen. The type I was diagnosed with when I was in my early 40s has no specific lab test or imaging to […]Read More Rare or rarely thought of?
I used to write. A lot. I still write, but not by hand. I was pretty young when I learned to use a typewriter to “hunt and peck” out primary school reports. I learned actual typing in high school — my god what a useful skill. My handwriting, always awkward and misshapen but usually legible if I […]Read More my “good writing”
Just for the hell of it… let’s consider how this symptom’s functional effects can be affected and mitigated by privilege.Read More Intersecting disability and privilege